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Tuesday, October 11, 2011

Healing from Lyme Disease 2. Salt and Vitamin C, dietary protocols

On a cold night in December 2004, a gigantic house spider, common to Europe where I lived, warmed itself beneath my blanket while I slept. I awoke with two large parallel spider teeth marks in the center of a swollen, red, itchy area just above my elbow. The spider was no where to be found.

Oh well, it was just a harmless house spider bite. Nothing to worry about.

Over the next few weeks I began to feel tired. I no longer bounced out of bed in the morning. After a few weeks, I found it hard to move at all. The feeling of fatigue had grown so gradually, however, that I didn't realize I was sick until Lyme was fully upon me -- again.

Five years earlier, I'd first come down with this disease. Now my doctor confirmed that there are many reports of Lyme infection after various insect bites, mites, ticks, mosquitoes, and also spiders.

I went online and looked into ways to increase the potency of colloidal silver, which, as I describe in my last post, I had used for three years in minimum dosages to keep Lyme disease in check. From January through March of 2005, I mixed colloidal silver with Gatorade. I'd read that the electrolytes in sports drink would increase the penetration of colloidal silver into the body. While I did see some improvement, it didn't feel as though I was hitting the bacteria hard enough. The herx reactions were diffuse, and I still felt incredibly fatigued.

I made an appointment with my Lyme-literate doctor in Switzerland. I wasn't looking forward to long-term antibiotic treatment, which, as I described in my last post, makes us feel much worse before we get better. My appointment was for May 15.

Strangely, I often found myself wandering about my kitchen, looking for something... I didn't know what for, I just had a feeling.... I was probably crazy, but I had a strong feeling that the thing that would heal me was right there in my kitchen. It was cheap, it was accessible, it was right there. If I could only figure out what it was.

In April, I learned about the new sea-salt and vitamin C therapy that had generated an online buzz and attracted hundreds of us "Lymies" willing to experiment. This bizarre-sounding therapy was touted as anti-parasitic, anti-fungal, anti-spirochetal, antibacterial, and antiviral.

It sounded crazy, but ... I actually already had the ingredients in my kitchen. As far as I could tell, I would tolerate the increase in salt as my kidneys are healthy, and vitamin C was harmless as any excess would be excreted in my urine.

The protocol begins with two grams of each per day, and gradually builds to twelves grams a day. I immediately felt much better. When waking in the morning, I could actually feel my extremities--the numbness was gone! My legs belonged to my body again. I had plenty of energy and strength.

After three days, the first herx began. My feet swelled and were painful. I could hardly walk. This soon abated, however, and for about three weeks I felt healthier than I had in months. I cleaned the house, organized, de-cluttered, painted a wall... it was a miracle. I increased the dosage,  a gram every few days. I plateaued for a while at six grams, at nine grams, and gradually worked my way up to twelve grams a day.

I had several herxes at about four week intervals, and they were more painful and extreme than they had been with antibiotics. Yet, between these herxes, I enjoyed energy and health as I hadn't since before the initial onset of the disease in 2000.

One very unusual symptom common to the salt/C protocol is the feeling of tiny creeping and crawling sensations just beneath or above the skin. It was so strange. At first, I felt these sensations all over my body. In later months, I felt them beneath my knees and in the ankles and feet. Sometimes, one large area in my leg would "jiggle" for hours--clearly the protocol was hitting the nerves, but it felt so much like an insect that I often ripped off my pajamas at night to see what was crawling on me.

Since that time -- 2005 -- many people have tried salt/C. While most see improvement, not all are healed. Here are some of the methods I used.

1) When I was due for a herx, I would increase the dosage to 15 grams a day be sure that I was really hitting the bacteria hard. I believed that in provoking the herx, I could be sure with each cycle that I eradicated another layer of the pathogens.

2) I ground the salt in an old coffee grinder and mixed it together with powdered ascorbic acid in a jar. I combined the salt and vitamin with 2/3 water and 1/3 fruit juice (grapefruit, pineapple and apple juice taste ok with salt/C), and this made it easier to swallow.

3) The dosages were spread throughout the day, one in the morning, afternoon, and evening. I did take a dosage at night, if I hadn't gotten around to it in the evening. I don't suggest doing this often, as it can interfere with sleep. (But it can also improve sleep at times.)

4) I did not sip the salt/C throughout the day, but rather, took each dose fairly quickly, swallowing it down at once.

5) I did not eat 10 minutes before or after taking my dose.

6) I had already done a moderate heavy metal detox in 2003, after removing my amalgams. It is difficult to heal from Lyme disease if the body is full of heavy metals. However, some people do succeed, even with amalgam fillings, when using salt/C.

7) I had lived in Europe over two decades at that time, and had not been exposed to genetically modified foods, or to antibiotics or growth hormones in dairy and meat products. I had not had an immunization since childhood. I believe these things do make a difference as far as having an intact and resilient immune system. Wherever you live, try to live as naturally as possible. Avoid an overload of electro-smog. Eat fresh, real food. 

I began this treatment at the end of April 2005, and by January 2006 the worst was over. I had the so-called "brain-herx" in December, (when the feelings of anxiety and hopelessness were worst), and hoped that the salt/C had penetrated to the deepest layer. It appeared to be so. After that herx, the remaining herxes were mild.

With one exception. In one of the very last herxes, I felt pain in all my teeth. It was so concrete that for several days I actually believed all my teeth were infected. It was very frightening, as I'd never experienced anything like it before. But as quickly as the pain appeared, it abated.

In Spring of 2006, I began three additional dietary protocols. With each, I felt I was a step closer to complete remission.

1) I did an anti-yeast (candida) dietary protocol for six weeks.

2) I then avoided all gluten and dairy for six weeks.

3) I then ate six cloves of raw garlic a day for six weeks.

By summer of 2006, I felt healed. I continued to take salt/C at a maintenance dosage (4-8 grams a day), but no longer had a herx reaction.

There are many other supplements and other healing protocols that I did while healing with salt/C, (qi-gong, raw milk, self-made kefir, healthy fats, turmeric and anti-inflammatory herbs and foods, to name a few) but I have outlined the main protocol here.


To learn more about the salt/C protocol, see the yahoogroup "lymestrategies."

14 comments:

  1. How did you eat raw garlic cloves without burning a big hole in your stomach? I love garlic but if I eat it raw, or ever take it in capsules, it burns my stomach pretty bad. Would love to take it but it just doesn't agree with me.

    Gary
    P.S. Did you release a lot of visible parasites while you were on this protocol?

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  2. Gary, I put the garlic into everything I ate that was bulky, for instance, mixed in with rice or smashed into potatoes and veggies. I put it into muesli with yogurt, and concocted a fried apples, honey, garlic and yogurt dessert. The trick was to press it in after the food was prepared, so that I was eating it raw but in the middle of a bulk of food so it didn't hit my stomach alone.

    It's not uncommon for people to be unable to tolerate raw (or cooked) garlic and also onions, and it may help if the garlic is organic. I felt it was an important part of my healing. I did it at the end, after the yeast and after the gluten free, dairy free diet. Perhaps because my gut was already so cleared, the garlic was easy to tolerate, and it didn't make me smell awful. I can't explain it otherwise. I was eating tons of garlic, raw, but didn't stink. Whereas today if I eat raw garlic everyone notices. :(

    No, I didn't see parasites. I did get the patches of tiny scabs however, mostly near my elbows. I haven't had them since, unless I am doing a parasite protocol so there may be a connection. (Salt/C folk often get these patches, and think it may be the exit places of parasite. Hard to imagine but I really don't know.)

    Thanks for commenting. I hope I answered your questions.

    Hilary

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  3. For those interested I have a free Lyme Resource CD at www.lyme-resource.com It documents a lot of testomonials from people who succesfully used this protocol (my wife included) plus many many other regimens and data!

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  4. would you mind explaining the other things you did as well...such as diet and suppliments? ie" (qi-gong, raw milk, self-made kefir, healthy fats, turmeric and anti-inflammatory herbs and foods, to name a few" thanks Christine

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  5. Christine, Qi-Gong... I was expecting to find a group here when I moved to Ashland, Oregon, but there is none. It is not as fashionable as yoga, I guess. But for someone dealing with an illness, it is optimal because it is low-energy, easy to do, and has an incredible effect. I have heard though that like any "method" you can get mixed up with groups and teachers who make quite a cult out of it. Let me see if I can find a good online resource for you.

    As for the supplements, this is a good time to plug my book, "Mother Food" which talks about anti-inflammatory foods and herbs. The book Lyme Diet does the same. I'll put it on my list of things to do, to write a blog post on that.

    One suggestion though: buy astragalus and dong quai (for instance, from mountainroseherbs.com), take about 10 pieces of astragalus and a tablespoon of dong quai, simmer them together for about twenty minutes in a quart of water, and drink that throughout the day. This TCM tonic gave me a lot of stamina and feeling of a buffer zone against things that would otherwise throw me, like cold weather, irritable people, loud noise.

    Hilary

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  6. Hilary, your story is inspiring ~ thank you for your writing ~

    hope you don't mind me asking, did you have a lot of neurological symptoms with your illness? "Lyme" disease seems to describe a very wide range of experiences.

    I'm thinking of doing the salt-c protocol as my body is very drug-sensitive.

    Also, interesting that you mention the astragalus in this last comment, as Stephen Buhner says for late stage lyme folks not to take astragalus. It looks like it was just right for you!

    I'm just in awe as to how different everyone responds to various natural and non-natural medicines.

    Much gratitude and peace

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    Replies
    1. Hi, I had mostly neurological symptoms: extreme fatigue, mind-fog, inability to find words, pin pricks and stabbing pains in nerves, some difficulty walking.

      I had two pieces already in place when I began: I had done a heavy metal detox, and I had taken so much colloidal silver in the months before that I probably did not have much fungal infection, and the silver may have beaten back other infections as well.

      Different doctors unfortunately have different takes on what is helpful for Lyme. I was very lucky that I hit on what worked for me.

      Hilary

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  7. Hey Hilary- I was wondering if I could email you to ask a few questions? my email is overallgirl@gmail.com. I have lyme and trying to decide what the next step to healing I should try- things are bad enough that I am considering a wheelchair now and my son is only 4 so would really like to find a way to get better not worse. My confusion is that there seem to be dozens of different lyme therapies and choosing one to try that might be most effective is quite difficult. I have always been into natural health so it is very hard to consider taking long term antiobitics, but I will if it really has that much merit- my problem is when I search online it seems that results are split down the middle- some who say long term antibiotics helped them tremendously and others who feel it didn't help at all. I have no doubt had lyme for 10 years already in the sense of having symptoms this long, and got a tick bite in my head about 20 years ago. I was just curious now towards the end of 2013 how you are doing, and if you were starting from the beginning again of being sick and not knowing what to do, which of these treatments that you have used do you think you would pursue first? Would you do the antibiotics again, or would you try the vitamin c/salt thing? I have also heard interesting stuff about the hcl hydrochloric acid protocol.

    Please any help or advice you could give would be so great- I am seeking to contact as many people as possible so that I can see which way I should go as I'm so confused right now.

    thank you,

    Andriana

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    Replies
    1. Yes, I'm happy to help and will contact you. Sorry to hear about your troubles.

      Hilary

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